About the Brittle Bone Society

Welcome to the Brittle Bone Society

Founded in Dundee in 1968 the Brittle Bone Society is the only UK wide organisation providing support to people affected by the rare bone condition Osteogenesis Imperfecta (OI).

It was established by a Dundee woman, Margaret Grant, who has OI. When she was young Margaret was aware that there virtually no support for people with OI and that many medical professionals knew little or nothing about the condition. When her daughter Yvonne was born some years later very little had changed. Margaret was convinced that there were other OI people in the same position as herself and that they would all benefit from supporting each other, and so the Brittle Bone Society was born. For many years Margaret was the driving force of the BBS, which was recognised when she was awarded an MBE in 1989.Still based in Dundee the BBS now has around 1,000 members, some of whom are second or third generation of the families who contacted Margaret more than thirty years ago.

How does the Society help?

Through the Society, families can get in touch with each other and share issues on how to cope. Letters and telephone calls reassure them they are not alone. The Society organises local meetings and an annual conference, which enables families to meet and exchange ideas.

The Society can also give help and advice on benefits, mobility, education, equipment, medical issues including genetics, and other issues associated with OI.

We can also provide short term loan of specialist wheelchairs and other equipment when required.

Who do I Contact?

For advice on any aspect of OI, or for more information on the loan equipment we have available please contact our Support Worker, Jill Murdoch on 08000 28 24 59 or by email to jill@brittlebone.org

Many people with OI need specialist wheelchairs or equipment which is not available through the NHS. A large part of the Society's work is raising the money to pay for such equipment. This can take some time and we will need a full assessment and quote for the equipment before we can start raising funds.

If you think we can help with a new wheelchair or any other equipment please contact our Fundraising Officer, Christine Hope, on 01382 204446 or by email to christine@brittlebone.org  

For inquires about membership, received donations or general administration contact our Administrator, Annette McIntyre on 01382 204446 or by email to annette@brittlebone.org