Helping those with Osteogenesis Imperfecta (OI)
Brittle Bone Society
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About the Brittle Bone Society
Who we are
The Brittle Bone Society is the only UK charity supporting people who have Osteogenesis Imperfecta* (OI)
What we do, the support we offer
We work closely with the main NHS centres of excellence in the UK - Sheffield, Birmingham, Great Ormond Street, Bristol and Glasgow. We fundraise for specialised wheelchairs and offer a free confidental support service and signposting help on all day to day issues such as genetics, education, work and travel.
Isolation affects many of our members and we arrange regular events to encourage peer support and networking. We are keen to grow our involvement in vital research work, to help improve treatment and care of those living with bones that break. With the help of our specialist Medical Advisory Board we aimto provide the latest updates on treatment and care for members with OI.
Working in partnership
We work with many trusts and grant making instituations across the UK who support the work that we do. With many charities making applications to these organisations our fundraising campaigns are more vital that ever. We value the support our general fundraised offer to us by arranging events to assist us with our financial targets.
The future for the BBS
- We aim to work with our partners to tackle the shortage of transitional services (child to adulthood) available in the NHS
- We aim to provide every person in the UK with OI the wheelchair they need
- We aim to continue to provide support and advice including peer support to people with OI
- We aim to increase our involvement in areas of research into OI