Helping those with Osteogenesis Imperfecta (OI)
Brittle Bone Society
Welcome to the Brittle Bone Society
BBS Job Vacancy - Chief Executive Officer: £38,000 - £42,000 (Depending on Experience)
THE BRITTLE BONE SOCIETY, A DUNDEE BASED CHARITY ESTABLISHED IN 1968 SEEKS A NEW CHIEF EXECUTIVE WITH THE VISION AND DRIVE TO DEVELOP STRATEGY AND MAKE A REAL DIFFERENCE TO THE SUPPORT SERVICES WE PROVIDE TO THOSE AFFECTED BY OSTEOGENESIS IMPERFECTA (BRITTLE BONES).
To receive an application pack and further information, please email annette@brittlebone.org - Closing date for applications is 17thJuly 2009.
Welcome to the Brittle Bone Society
Founded in Dundee in 1968 the Brittle Bone Society is the only UK wide organisation providing support to people affected by the rare bone condition Osteogenesis Imperfecta (OI).
It was established by a Dundee woman, Margaret Grant, who has OI. When she was young Margaret was aware that there virtually no support for people with OI and that many medical professionals knew little or nothing about the condition. When her daughter Yvonne was born some years later very little had changed. Margaret was convinced that there were other OI people in the same position as herself and that they would all benefit from supporting each other, and so the Brittle Bone Society was born. For many years Margaret was the driving force of the BBS, which was recognised when she was awarded an MBE in 1989.Still based in Dundee the BBS now has around 1,000 members, some of whom are second or third generation of the families who contacted Margaret more than thirty years ago.
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We still offer help, support and advice to anyone affected by OI, including family, carers, social workers and other professionals. Steven Aghanti was recently helped by the Brittle Bone Society. After suffering many fractures in early childhood the Society assisted in Steven's care and improvement throughout 2008. Click to see a BBC News article: |
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On May the 15th we launched our new look website which is based on a new user friendly Content Management System which allows the editorial team to keep the Society website upto date very easily. We will also be launching new facilities and features. Please keep looking at the new section to keep up to date. Laslty the BBS Message Forum is now active again. Lastly we hope you enjoy reading about the launch of American writer Jodi Picoult's new book 'Handle with Care' which recently launched in the UK, with interviews in newspapers and Simon Mayo on the BBC. Please see the news pages. |



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