OTHER BONE CONDITIONS LINKS
Children's Chronic Arthritis Association
Ground Floor Office
Amber Gate
City Walls Road
Worcester
WR1 2AH
Tel. 01905 745595 (Mon-Fri, 10am-1pm)
Fax. 01905 745703
E-mail. info@ccaa.org.uk
Web. www.ccaa.org.uk
Arthritis Care
18 Stephenson Way
London
NW1 2HD
Tel. 0808 800 4050 Helpline (Mon - Fri, 12noon - 4pm)
Tel. 020 7380 6555 (Mon - Fri, 10am - 4pm)
Fax. 020 7380 6505
Web. www.arthritiscare.org.uk
E-mail. helplines@arthritiscare.org.uk
The Source - a helpline for young people with arthritis
(under 26)
Tel. 0808 808 2000 (Mon - Fri, 10am - 2pm)
E-mail. thesource@arthritiscare.org.uk
Ehlers-Danlos Support Group
PO Box 337
Aldershot
GU12 6WZ
Tel. 01252 690940
E-mail. info@ehlers-danlos.org
Web. www.ehlers-danlos.org
Marfan Association UK
Rochester House
5 Aldershot Road
Fleet
Hampshire
GU51 3NG
England
Tel. 01252 810472
Fax. 01252 810473
Web. www.marfan.org.uk
National Osteoporosis Society
www.nos.org.uk
Bone Cancer
www.cancerresearchuk.org
National Association for the Relief of Paget's Disease
Offers support and information for people with the illness and sponsors
research into its diagnosis, treatment, and prevention.
www.paget.org.uk
McCUNE-ALBRIGHT SYNDROME
A sporadic genetic condition resulting in fibrous tissue growth in the bones,
premature puberty in females and “café-au-lait spots”
on the skin…
www.cafamily.org.uk
GAUCHERS DISEASE
Gaucher disease is an inherited, enzyme deficiency, disorder. Symptoms
may include anaemia, fatigue, a tendency to bleed, an enlarged spleen and
liver, bone pain, degeneration and fractures.
www.gaucher.org.uk
Please note that the Brittle Bone Society is not responsible for
the content of external websites.
If you know of any other sites that we can list here please email details
to
bbs@brittlebone.org
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