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Other Bone Condition Links

Osteogenesis Imperfecta is only one of many bone conditions. In case you need support, information or advice on any of the other conditions we have listed a few organsiations who may be able to help.

GAUCHERS DISEASE

Gaucher disease is an inherited, enzyme deficiency, disorder. Symptoms may include anaemia, fatigue, a tendency to bleed, an enlarged spleen and liver, bone pain, degeneration and fractures.
http://www.gaucher.org.uk

McCUNE-ALBRIGHT SYNDROME

A sporadic genetic condition resulting in fibrous tissue growth in the bones, premature puberty in females and “café-au-lait spots” on the skin…
http://www.cafamily.org.uk

National Association for the Relief of Paget's Disease

Offers support and information for people with the illness and sponsors research into its diagnosis, treatment, and prevention.
http://www.paget.org.uk

Bone Cancer

http://www.cancerresearchuk.org

National Osteoporosis Society

http://www.nos.org.uk

Marfan Association UK

Rochester House 5 Aldershot Road Fleet Hampshire GU51 3NG England

Tel: 01252 810472

Fax: 01252 810473
http://www.marfan.org.uk

Ehlers-Danlos Support Group

PO Box 337 Aldershot GU12 6WZ

Tel: 01252 690940
http://www.ehlers-danlos.org
info@ehlers-danlos.org

The Source - a helpline for young people with arthritis (under 26)

Tel: 0808 808 2000 (Mon - Fri, 10am - 2pm)
thesource@arthritiscare.org.uk

Arthritis Care

18 Stephenson Way London NW1 2HD

Tel: 0808 800 4050 Helpline (Mon - Fri, 12noon - 4pm) | 020 7380 6555 (Mon - Fri, 10am - 4pm)

Fax: 020 7380 6505
http://www.arthritiscare.org.uk
helplines@arthritiscare.org.uk

Children's Chronic Arthritis Association

Ground Floor Office Amber Gate City Walls Road Worcester WR1 2AH

Tel: 01905 745595 (Mon-Fri, 10am-1pm)

Fax: 01905 745703
http://www.ccaa.org.uk
info@ccaa.org.uk