Patients Days

BBS Patient Workshops Roadshow

The BBS hold one day patient events throughout the year, currently part-funded by Alexion, and in conjunction with the Highly Skilled Centres of Excellence. These events are held at various locations and will allow members to access BBS services and support. 

We are aware the annual conference can be an expensive weekend for families. These one day events will allow more individuals the opportunity to attend localised events on an informal basis, and to hear talks from healthcare professionals. We also plan to invite individuals with similar rare bone conditions like Hypophosphatasia.

To ensure you are on the mailing list for these events, please contact HQ with your email address.

Visit our photo gallery to see a sample of our events.  


Previous Patient Days

BELFAST & DUBLIN - 6 & 7 May 2017

We celebrated Wishbone Day with free events in Belfast and Dublin this May. We had featured talks from: Professor Stuart Ralston - The University of Edinburgh; Fiona McLaughlin - Northern Ireland Rare Disease Partnership; David King - Parent; Professor Malachi Mckenna - St Vincent's University Hospital; Dr Ciara McDonnell - Children's University Hospital, Temple Street. Thanks to the speakers, and to all those who attended and made our Wishbone Weekend a great success!

Photo Gallery


LONDON - 25th February 2017

010.jpgBBS staff went on to host a hugely successful patient day event Feb 25th in London fully supported by London hospitals with our thanks to all the medics involved – GOSH, Stanmore, Royal National Orthopedic and London North West hospitals. The packed room of 75 delegates were greeted by VIP guest Professor Glorieux whose visit to the UK was sponsored by our good friends at OIF in the USA. Topics covered by wonderful speakers spanned across children’s and adult services, dentistry, genetics and specialised surgery and there were also great talks by the Allied Healthcare teams on aspects of Occupational Therapy, Physio and Clinical Psychology. You can find details of the day’s programme here.


BRISTOL - 26th February 2017

The BBS team traveled to Bristol for Sunday Feb 26th to round up their whirlwind weekend of fabulous events with the Bristol Hospital teams from across local hospitals. This event covered many of the similar topics hosted in London – and there was a great debate about pain and pain management which the BBS would like to explore further with the Healthcare Professionals involved. We got a chance to discuss our plans at the BBS and gained some fantastic stories from members we can use for our 50th Anniversary. You can see the full Bristol Programme of all those involved here


Photo Gallery

BIRMINGHAM - 7th May 2016

As part of our BBS Wishbone Day celebration, the BBS held a Patient Day in Birmingham on Saturday 7th May at the Holiday Inn, Birmingham M6 Jct. 7. At this event delegates were able to hear from a host of leading Healthcare Professionals, along with Britain's most successful Tennis Player of all time and BBS Patron Jordanne Whiley, MBE.

Photo Gallery


GLASGOW - 30th January 2016

The Glasgow Patient Day was held on January 30th at the Beardmore Hotel. The event played host to a variety of topics ranging from genetics to therapeutics. Speakers at the event included Professor Faisal Ahmed, Dr Avril Mason and Dr Esther Kinning all from the Royal Hospital for Children Glasgow. Speaking on behalf of RDUK was Natalie Frankish. The full list of speakers can be found here.

Photo Gallery

DUBLIN - 23rd January 2016

The Dublin Patient Day was held on January 23rd at the Raddison at Dublin Airport. The event played host to a variety of topics ranging from genetics to therapeutics. Guest Speakers included Professor Nick Bishop from Sheffield Children's Hospital and Dr Ciara McDonnell from the Children's University Hospital Dublin. Find the full agenda here.

Photo Gallery


BELFAST - 22nd January 2016

The first Patient Day of 2016 was held in Belfast, Northern Ireland on January 22nd at the Ramada Plaza. The event played host to a variety of topics ranging from genetics to therapeutics. Guest Speakers included Professor Nick Bishop and Dr Paul Arundel from Sheffield Children's Hospital, from Musgrave Park Hospital Dr Madeleine Rooney, Dr Paul Jackson and Dr Catherine Duffy and Ms Christine Collins - chairman (NIRDP). Special Guest included Jim Shannon MP. Find the full agenda here

Photo Gallery


SHEFFIELD - 9th May 2015

On the 9th of May 2015, we held our second Patient Day Workshop in Sheffield. The event was held as part of our Wishbone Day celebrations and made host to a variety of topics ranging from genetics to therapeutics. Guest Speakers included Prof. Nick Bishop, and specialists from Sheffield Childrens Hospital, Yellow Card and BBS volunteers.  The event ended with the premiere of our VOICE 2015 Film.


DUNDEE - 28th Feb 2015

The first of these events was held on the 28th Feb 2015, Rare Disease Day, in Dundee and was a great success with over 70 members in attendance.  Talks were heard from Medical Professionals from Yorkhill Hospital for Sick Children, Genetic Alliance and Yellow Card as well as talks from BBS staff, volunteers and supporters.