Helping those with Osteogenesis Imperfecta (OI)
Brittle Bone Society
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The Brittle Bone Society welcome your views
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Possible TV Documentary
Dear Members,
The BBS have been contacted by a television producer looking to get an insight into some of the challenges as well the uplifting moments that come with living with different type(s) of Osteogenesis Imperfecta and short stature, with a view to commissioning a new programme for the BBC - very much highlighting the positives about living with a rare condition.
The producer is at the research stage and just looking to speak to people at this point in time, for a no commitment, confidential conversation.
Perhaps you are considering parenthood for the first time? Perhaps the challenges of teenage parenting are proving particularly taxing? Whatever your situation if you would like to learn more then drop Jill an email (jill@brittlebone.org) and we will with your permission pass on your details.
Government Consultations
Consultation on the United Kingdom Plan for rare diseases.
Websites for review - let us know what you think of the websites below
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