Our Work

The Brittle Bone Society is the sole organisation set up to address the needs of people born with Osteogenesis Imperfecta (OI). The charity supports people in the UK and Republic of Ireland.

It was the first registered charity in the world
set up to support individuals with OI. We were founded in Dundee in 1968 by a local lady, Margaret Grant MBE, whom herself had OI.

Our Work

 

The Brittle Bone Society was established in 1968. We support the needs of people born with the rare condition Osteogenesis Imperfecta (OI), and their families in the UK and Republic of Ireland.

Our charity mission seeks a world in which the needs of people living with OI are better understood, respected and fully met.

We also work closely with other organisations in the rare disease field and our sister organisations, the Osteogenesis Imperfecta Federation Europe (OIFE) and the Osteogenesis Imperfecta Foundation (OIF) in the USA.

We champion useful partnerships and have forged meaningful relations with other rare bone groups including X-linked Hypophosphatemia (XLH)Fibrous Dysplasia, and Hypophosphatasia (HPP) during our involvement with programmes like the RUDY study.

Our national charity achieves a great deal by bringing together clinical experts, our professional staff, and volunteers – all of whom share a passion for the cause and have the skills to deliver our work.  Working in this way means that we can ensure that our support and information really makes a difference, our research and campaigning can change lives and our awareness work reaches as many people as possible.

 

Strategic Plan 2022 to 2026

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