Adult Rare Bone Network Launch Event


The BBS are delighted to be hosting an event to celebrate the launch for the NHS Adult Rare Bone Network, a new Rare Disease Collaborative Network (RDCN)! We will be welcoming healthcare professionals and industry experts to an afternoon of informative talks, networking and insights into the RDCN.

The Adult Rare Bone Network is another step in innovating care for those with rare bone diseases. The event will celebrate launch of this significant step in rare bone healthcare. There will be speakers discussing a variety of elements regarding the Rare Disease Collaborative Network, including the Lord Kevin Shinkwin, a leading advocate in the disability sector, and Professor Kassim Javaid, Chairman of the Charity’s Medical Advisory Board. You can view the full agenda here.

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