Adult Rare Bone Network Launch Event


The BBS hosted an event to celebrate the launch for the NHS Adult Rare Bone Network, a new Rare Disease Collaborative Network (RDCN)! We welcomed healthcare professionals and industry experts to an afternoon of informative talks, networking and insights into the RDCN.

The Adult Rare Bone Network is another step in innovating care for those with rare bone diseases. The event celebrated the launch of this significant step in rare bone healthcare. We heard from a range of speakers discussing a variety of elements regarding the Rare Disease Collaborative Network, including the Lord Kevin Shinkwin, a leading advocate in the disability sector, and Professor Kassim Javaid, Chairman of the Charity’s Medical Advisory Board.

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