Brittle Bone Society (BBS) are delighted to launch the second year of this award in the name of our late Trustee, Mr Gareth Cumming.

 

Applications will close 19th April 2024.

 

The winner will be announced approximately 4 weeks after.

 

We invite applicants from the UK and Ireland who have OI, are aged 18 or over, and want to experience something new to apply for up to £1000.

 

Perhaps you want to travel independently, visit a new location, meet people or learn something new ie attend a training course. Having OI may put hurdles in your way, however, Gareth would have said: ‘nothing is impossible’.

 

Gareth’s Memorial Award is designed to assist with overcoming some of the challenges encountered along the way. This grant may offer a boost of confidence and make a positive difference on your journey. The Gareth Memorial award is intended to help you take that first step.

 

About Gareth

 

Gareth Cumming loved adventure, new experiences, laughter, sunshine and especially travel. He filled a room with his smile and massive personality, he loved people and had unconditional love for his OI family.  Gareth valued his independence and loved hearing stories of members of his OI family being resilient, confident and following their dreams.

 

You can download the Application Form HERE.

Or, fill out the electronic application form HERE.

The BBS were excited to announce the recent grant win to researchers at the University of Dundee School of Dentistry. The grant totalling £24,612.00 will help conduct an important first step in improving (Oral) healthcare for people who are born with the rare and challenging condition of Osteogenesis Imperfecta (OI).
Winners of the charity award are from the School of Dentistry; University of Dundee and they were thrilled to pick up the grant award. Lead researchers, Dr Niall McGoldrick, clinical lecturer and honorary consultant in dental public health and Dr Heather Cassie, The project is a four phase multi-method project that aims to improve dental care pathways for people with OI.

 

Dr McGoldrick said “People with experience of brittle bone disease have expressed that more is needed to improve their access to dental services and to find better ways to treat and prevent dental disease. Our research will work with people with lived experience and with dentists to explore the barriers to accessing care and how best to improve it. Ultimately this research will improve dental care for people with brittle bone disease by making it more accessible and inclusive.”

 

Joining Dr McGoldrick in leading the project is Dr Heather Cassie, Dr Cassie cited a quote from the Charity’s literature – from young Lucy stating: ‘I hope access to dentists and other essential care gets easier for us all. I hope that things will be better as I grow up’. Dr Cassie continued: “Our research will bring together the existing international literature on clinical interventions and oral health promotion. Our research will listen to people with OI and to dental teams to find ways to practically improve dental care pathways using lived experience as a key driver.

 

Patricia Osborne, CEO of the Brittle Bone Society said “With this win going to the local University of Dundee, we’re very pleased and this will be the first Dental programme our Scientific Advisory Board has selected. The win caused smiles all around and was further endorsed by Trustee Yvonne Gant who said “The OI community definitely place oral care as a top priority “People with experience of brittle bone disease have expressed that more is needed to improve their access to dental services and to find better ways to treat and prevent dental disease”.

 

Pictured receiving the winning cheque at the BBS HQ, Dr McGoldrick and Dr Cassie were presented with the Research Grant award of £24,612.00 by Trustee Yvonne Grant, who is daughter of the founding member the Late Dr Margaret Grant MBE – alongside Patricia Osborne CEO.

Pictured receiving the winning cheque at the BBS HQ, Dr McGoldrick and Dr Cassie were presented with the Research Grant award of £24,612.00 by Trustee Yvonne Grant, who is daughter of the founding member the Late Dr Margaret Grant MBE – alongside Patricia Osborne CEO.

The BBS are proud to be sponsoring the “Touch a Life Award” for a nursing student in memory of the Late Dr Margaret Grant MBE for the second year.

This award aims to recognise a nursing student who demonstrates the heart of nursing through the impact they have on either an individual, a family or a community.

Trustees and staff are grateful to have the opportunity again this year, to remember our late founding member by recognising the work of hard-working individuals in the nursing profession!

Trustee Yvonne Grant attended to present this special award to student nurse Tyler Kirkham the 2023 Winner.  The Awards Ceremony was hosted by Programme Lead, Patricia Kydd. Also attending the event were Charity CEO Patricia Osborne and Support Development Officer Coreen Kelday.

Margaret Grant would approve this lasting legacy in a profession she cared about here in Dundee – the city of her birth and at the seat of learning at the School of Health Sciences, University of Dundee.  The University who so kindly bestowed her honorary doctorate.

The BBS are delighted to announce the winner of the first Gareth Cumming Adventure Memorial Award is Martha Harris!

Martha is using the grant to contribute towards funding an academic year at the University of Alabama, where she will be playing wheelchair tennis in the National College League.

BBS Trustees were extremely impressed by Martha’s application and felt that the grant would contribute towards funding an exciting, once-in-a-lifetime opportunity.

Martha is grateful to be receiving this award, telling CEO Patricia Osborne: “I’m honoured that the Brittle Bone Society has awarded me the Gareth Cumming Adventure Memorial Award. This actually fills in my last funding gap and makes my planned dream adventure into Wheelchair Tennis and American college life a reality; I’m absolutely thrilled!”

The BBS are thrilled that we contribute towards making Martha’s dreams a reality.

Have a great year studying in the USA, Martha!

 

 

The Gareth Cumming Adventure Memorial Award

 

Brittle Bone Society launched this award in the name of our late Trustee, Mr Gareth Cumming.

We invited applicants from the UK and Ireland who have OI, are aged 18 or over, and want to experience something new to apply for up to £1000.

Perhaps you want to travel independently, visit a new location, meet people or learn something new ie attend a training course. Having OI may put hurdles in your way, however, Gareth would have said: ‘nothing is impossible’.

Gareth’s Memorial Award was designed to assist with overcoming some of the challenges encountered along the way. This grant is intended to offer a boost of confidence and make a positive difference on your journey. The Gareth Memorial award is intended to help you take that first step.

 

About Gareth

 

Gareth Cumming loved adventure, new experiences, laughter, sunshine and especially travel. He filled a room with his smile and massive personality, he loved people and had unconditional love for his OI family.  Gareth valued his independence and loved hearing stories of members of his OI family being resilient, confident and following their dreams.

 

First Winner Announced

The winner of the first Gareth Cumming Adventure Memorial Award was announced on 10/07/2023. You can read all about our first winner here!

 

 

The Brittle Bone Society, Interloch Community Transport and Sheppey Matters are the first charities to be awarded funding from Motability’s portfolio of grant programmes specifically set up for other charities and organisations who support the transport needs of disabled people.

The new funding will buy wheelchairs and wheelchair accessories for the OI Community. Patricia Osborne, BBS CEO, said: “This amazing grant from Motability means we can get the right wheelchairs for individuals almost immediately! Our previous process worked, and we cannot thank all those Trusts enough, whom we worked with over many years to do that. However, the size of this Motability grant means we no longer need to apply to several Grant Givers for each individual application, while people waited for those last portions of funding to come through. This will radically speed up the process meaning they won’t have to wait.”

We are excited to work with Motability and continue to provide the right equipment and wheelchairs to the OI Community.

If you are needing equipment or a new wheelchair, you can find out how you can apply for a grant here.

We are delighted to announce that Scotmid has awarded the Brittle Bone Society a £500 Community Grant. This generous award will cover costs of the BBS Hospital Kids Packs. Thank you Scotmid!

 

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