A massive thank you to the fabulous volunteers from Smiths Interconnect Dundee who gave up their time to help us clear out our store room.

The guys managed to fill our skip of unwanted rubbish to the brim! It was great to have a local company caring about charities in the neighbourhood – Thanks Smiths Interconnect!!

Our Spring E-Zine covers key updates, news, and events that took place between January – March. Key highlights from this bumper issue include:

  • An insight into the array of events that the BBS has attended in the past three months
  • Exciting research updates
  • Stories from our fundraisers
  • Trustee and SAB updates

and much more! You can view the full E-Zine here.

We were delighted to be invited to participate in Dundee University Sports Medicine and Orthopaedics Society’s Conference this March. Patricia and Coreen delivered talks on the work of the BBS and Laura Pilkington who attended a recent Parliamentary event for us, gave a speech on her experience living with OI and her involvement in sport. We also had the opportunity to run a workshop for students, which included a glimpse into our History Bones project with many interesting artefacts and historic elements of OI and the BBS!

On the 18th and 22nd of March, we welcomed Dental students from the University of Dundee to the BBS headquarters In line with the BBS’ initiative ‘What you need to know about my OI’. As part of a two day visit, the students had the opportunity to chat with BBS members Jamie Abbott, Mark Ross and Trustee Yvonne Grant about their experiences with dental care and having OI on the first day and then returned their second day to present resources they had created from what they had learnt. They are continuing to develop these resources and hope to share them with us in the near future.

The students, as part of the Year 4 undergraduate curriculum cover a unit which involves community engagement where they meet with different groups to better understand different social, general and oral health needs of individuals. We were delighted to be able to share specific aspects of OI with the group.

On Thursday 14th March, Patricia and Coreen visited Ninewells Hospital in Dundee to host a stand for the annual meeting of the Dundee University Social Medicine Society. There were talks about vital links workers out and about in the community and how they compliment the work that ordinary GP’s undertake and can offer additional support with things like housing and benefits. We also heard about new ways of running GP practices to involve more holistic approaches to care in the community. The delegates included local GP’s and other healthcare workers. We got the opportunity to speak to medical students and took the opportunity to urge them to consider specialising in working in the rare bone space. It was a really interesting event and we were pleased to support it.

 

BBS are grateful for our members involvement in this project and if anybody would like to take part in future events, do please drop us a note to admin@brittlebone.org

BBS were pleased to catch up with supporter Fiona Holmes in Glasgow 14th March, when she joined Patricia and Coreen to visit Glasgow University, Centre for the Cellular Microenvironment (CeMi) for advanced research centre. BBS representatives were given a warm and hospitable welcome and asked to give a presentation to Researchers and students about OI. We gave an overview of our general work at the Charity, the support we provide and our research milestones. Fiona gave a personal insight about how she lives with OI and stayed on for a Q and A session after the event. The research department are working on a programme involving stem cells and potential bone growth. We hope to learn more about this project and will keep BBS members updated.

 

BBS are grateful for our members involvement in this project and if anybody would like to take part in future events, do please drop us a note to admin@brittlebone.org

BBS staff and ambassadors were out and about in Glasgow and Dundee on Thursday 14th March. Members David Queen and Steven Hastings presented to students at Glasgow Caledonian University, continuing our conversations with 2nd Year Paramedic Students and the day was a big success in our journey to speak to as many healthcare professionals as we can so they better understand OI.

 

BBS are grateful for our members involvement in this project and if anybody would like to take part in future events, do please drop us a note to admin@brittlebone.org

World Book Day 7th March 2024

 

For World Book Day we want to celebrate the many contributions our members make to the OI community

 

Below you will find a list of books written by BBS members over the years:

Racing a Glass Baby by Grace Anighoro

My Perfect Sister by Penny Batchelor

No Horn Unicorn by Shani Dhanda

Gigi and the Giant Ladle by Leanne Edney

Simply Me by Emma Honca

But Really… Adventures with a difference by David King

You are the best thing since sliced bread by Sam Renke

Variety of Books by Nabil Shaban

Unbroken Spirit by Jason Titley

The Dream Machine by Argerie Tsmicialis

 

Note:  BBS has not been involved in the preparation of these books, and posting details on this page does not constitute an endorsement of their content by BBS.  The views expressed are solely those of their authors and the content of these books should not be used as a substitute for professional medical and/or welfare advice.   For BBS publications on OI, please see our Factsheets section.

The BBS were excited to announce the recent grant win to researchers at the University of Dundee School of Dentistry. The grant totalling £24,612.00 will help conduct an important first step in improving (Oral) healthcare for people who are born with the rare and challenging condition of Osteogenesis Imperfecta (OI).
Winners of the charity award are from the School of Dentistry; University of Dundee and they were thrilled to pick up the grant award. Lead researchers, Dr Niall McGoldrick, clinical lecturer and honorary consultant in dental public health and Dr Heather Cassie, The project is a four phase multi-method project that aims to improve dental care pathways for people with OI.

 

Dr McGoldrick said “People with experience of brittle bone disease have expressed that more is needed to improve their access to dental services and to find better ways to treat and prevent dental disease. Our research will work with people with lived experience and with dentists to explore the barriers to accessing care and how best to improve it. Ultimately this research will improve dental care for people with brittle bone disease by making it more accessible and inclusive.”

 

Joining Dr McGoldrick in leading the project is Dr Heather Cassie, Dr Cassie cited a quote from the Charity’s literature – from young Lucy stating: ‘I hope access to dentists and other essential care gets easier for us all. I hope that things will be better as I grow up’. Dr Cassie continued: “Our research will bring together the existing international literature on clinical interventions and oral health promotion. Our research will listen to people with OI and to dental teams to find ways to practically improve dental care pathways using lived experience as a key driver.

 

Patricia Osborne, CEO of the Brittle Bone Society said “With this win going to the local University of Dundee, we’re very pleased and this will be the first Dental programme our Scientific Advisory Board has selected. The win caused smiles all around and was further endorsed by Trustee Yvonne Gant who said “The OI community definitely place oral care as a top priority “People with experience of brittle bone disease have expressed that more is needed to improve their access to dental services and to find better ways to treat and prevent dental disease”.

 

Pictured receiving the winning cheque at the BBS HQ, Dr McGoldrick and Dr Cassie were presented with the Research Grant award of £24,612.00 by Trustee Yvonne Grant, who is daughter of the founding member the Late Dr Margaret Grant MBE – alongside Patricia Osborne CEO.

Pictured receiving the winning cheque at the BBS HQ, Dr McGoldrick and Dr Cassie were presented with the Research Grant award of £24,612.00 by Trustee Yvonne Grant, who is daughter of the founding member the Late Dr Margaret Grant MBE – alongside Patricia Osborne CEO.

Our Festive E-Zine covers key updates, news, and events that took place between October – December. Key highlights from this bumper issue include:

  • An insight into the array of events that the BBS has hosted in the past three months
  • Exciting research updates
  • Stories from our fundraisers
  • Trustee and MAB updates

and much more! You can view the full E-Zine here.

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