RIP David Grant

 

David Grant a proud Dundonian with strong connections to local Charity Brittle Bone Society (BBS) died peacefully on Thursday 2nd May 2024, with his loving daughter Yvonne Grant by his side. David was husband of the late Dr. Margaret Grant MBE, the founder of the BBS. Margaret passed in 2020. Together they had worked over many years for the charity which was established in 1968 to support people all over the UK with the rare bone condition Osteogenesis Imperfecta. 

Born in Dundee on 10th June 1936, David was the youngest of 13 children born to parents Donald and Jane Grant and he worked in Dundee’s Jute mills and also worked as a porter at the Brittle Bone Society for many years.

The chair of the charity Elaine Healey said : “It is so very sad to lose David. We were all grateful and proud that David could witness the Charity’s 50 year anniversary celebrations in Dundee in 2018. Our condolences and thoughts are with our Trustee Yvonne and all her family. David devoted his life to supporting his family and also helped enormously in raising awareness of OI and, of course, with his wife Margaret our Charity. All of us with the condition now enjoy improved support and owe a debt of gratitude to David for his tireless support for people living with this rare condition.

Chief Executive Patricia Osborne said she was privileged to have met David and it was obvious that he lived for the love of his family.

Tributes from the Trustee Board, staff and the wider OI community worldwide have been pouring in.

The Society continues to provide front line support and raises thousands of pounds each year towards the supply of wheelchairs and equipment and to promote better care in the sector. Furthering both the support element and the research work was important to David and he was pleased to see the progress made over many years. The history of the charity’s much prized early work that David saw in the making has now been entrusted to the University of Dundee which is archiving and preserving the charity’s past in order to record its immense impact on the care of people with OI.

David is survived by his loving daughter Yvonne, who has also served as a trustee of the BBS for many years. The family want him to be remembered with fondness and love, for the tower of strength that he was to his late wife and daughter and the many friends he made in the OI community over a long number of years.

The funeral will be held on Wednesday 15th May at Coldside Church 2.15pm Main St, Dundee DD3 7HT and at Dundee Crematorium 3.30pm Macalpine Rd, Dundee DD3 8SD.

It is requested that messages of support and sympathy be sent to the offices of the Brittle Bone Society (BBS) Charity at 30 Guthrie Street, DD1 5BS. In lieu of flowers the family also request donations are made to the Brittle Bone Society (BBS).

A massive thank you to the fabulous volunteers from Smiths Interconnect Dundee who gave up their time to help us clear out our store room.

The guys managed to fill our skip of unwanted rubbish to the brim! It was great to have a local company caring about charities in the neighbourhood – Thanks Smiths Interconnect!!

Our Spring E-Zine covers key updates, news, and events that took place between January – March. Key highlights from this bumper issue include:

  • An insight into the array of events that the BBS has attended in the past three months
  • Exciting research updates
  • Stories from our fundraisers
  • Trustee and SAB updates

and much more! You can view the full E-Zine here.

We were delighted to be invited to participate in Dundee University Sports Medicine and Orthopaedics Society’s Conference this March. Patricia and Coreen delivered talks on the work of the BBS and Laura Pilkington who attended a recent Parliamentary event for us, gave a speech on her experience living with OI and her involvement in sport. We also had the opportunity to run a workshop for students, which included a glimpse into our History Bones project with many interesting artefacts and historic elements of OI and the BBS!

On the 18th and 22nd of March, we welcomed Dental students from the University of Dundee to the BBS headquarters In line with the BBS’ initiative ‘What you need to know about my OI’. As part of a two day visit, the students had the opportunity to chat with BBS members Jamie Abbott, Mark Ross and Trustee Yvonne Grant about their experiences with dental care and having OI on the first day and then returned their second day to present resources they had created from what they had learnt. They are continuing to develop these resources and hope to share them with us in the near future.

The students, as part of the Year 4 undergraduate curriculum cover a unit which involves community engagement where they meet with different groups to better understand different social, general and oral health needs of individuals. We were delighted to be able to share specific aspects of OI with the group.

On Thursday 14th March, Patricia and Coreen visited Ninewells Hospital in Dundee to host a stand for the annual meeting of the Dundee University Social Medicine Society. There were talks about vital links workers out and about in the community and how they compliment the work that ordinary GP’s undertake and can offer additional support with things like housing and benefits. We also heard about new ways of running GP practices to involve more holistic approaches to care in the community. The delegates included local GP’s and other healthcare workers. We got the opportunity to speak to medical students and took the opportunity to urge them to consider specialising in working in the rare bone space. It was a really interesting event and we were pleased to support it.

 

BBS are grateful for our members involvement in this project and if anybody would like to take part in future events, do please drop us a note to admin@brittlebone.org

BBS were pleased to catch up with supporter Fiona Holmes in Glasgow 14th March, when she joined Patricia and Coreen to visit Glasgow University, Centre for the Cellular Microenvironment (CeMi) for advanced research centre. BBS representatives were given a warm and hospitable welcome and asked to give a presentation to Researchers and students about OI. We gave an overview of our general work at the Charity, the support we provide and our research milestones. Fiona gave a personal insight about how she lives with OI and stayed on for a Q and A session after the event. The research department are working on a programme involving stem cells and potential bone growth. We hope to learn more about this project and will keep BBS members updated.

 

BBS are grateful for our members involvement in this project and if anybody would like to take part in future events, do please drop us a note to admin@brittlebone.org

BBS staff and ambassadors were out and about in Glasgow and Dundee on Thursday 14th March. Members David Queen and Steven Hastings presented to students at Glasgow Caledonian University, continuing our conversations with 2nd Year Paramedic Students and the day was a big success in our journey to speak to as many healthcare professionals as we can so they better understand OI.

 

BBS are grateful for our members involvement in this project and if anybody would like to take part in future events, do please drop us a note to admin@brittlebone.org

The BBS were excited to announce the recent grant win to researchers at the University of Dundee School of Dentistry. The grant totalling £24,612.00 will help conduct an important first step in improving (Oral) healthcare for people who are born with the rare and challenging condition of Osteogenesis Imperfecta (OI).
Winners of the charity award are from the School of Dentistry; University of Dundee and they were thrilled to pick up the grant award. Lead researchers, Dr Niall McGoldrick, clinical lecturer and honorary consultant in dental public health and Dr Heather Cassie, The project is a four phase multi-method project that aims to improve dental care pathways for people with OI.

 

Dr McGoldrick said “People with experience of brittle bone disease have expressed that more is needed to improve their access to dental services and to find better ways to treat and prevent dental disease. Our research will work with people with lived experience and with dentists to explore the barriers to accessing care and how best to improve it. Ultimately this research will improve dental care for people with brittle bone disease by making it more accessible and inclusive.”

 

Joining Dr McGoldrick in leading the project is Dr Heather Cassie, Dr Cassie cited a quote from the Charity’s literature – from young Lucy stating: ‘I hope access to dentists and other essential care gets easier for us all. I hope that things will be better as I grow up’. Dr Cassie continued: “Our research will bring together the existing international literature on clinical interventions and oral health promotion. Our research will listen to people with OI and to dental teams to find ways to practically improve dental care pathways using lived experience as a key driver.

 

Patricia Osborne, CEO of the Brittle Bone Society said “With this win going to the local University of Dundee, we’re very pleased and this will be the first Dental programme our Scientific Advisory Board has selected. The win caused smiles all around and was further endorsed by Trustee Yvonne Gant who said “The OI community definitely place oral care as a top priority “People with experience of brittle bone disease have expressed that more is needed to improve their access to dental services and to find better ways to treat and prevent dental disease”.

 

Pictured receiving the winning cheque at the BBS HQ, Dr McGoldrick and Dr Cassie were presented with the Research Grant award of £24,612.00 by Trustee Yvonne Grant, who is daughter of the founding member the Late Dr Margaret Grant MBE – alongside Patricia Osborne CEO.

Pictured receiving the winning cheque at the BBS HQ, Dr McGoldrick and Dr Cassie were presented with the Research Grant award of £24,612.00 by Trustee Yvonne Grant, who is daughter of the founding member the Late Dr Margaret Grant MBE – alongside Patricia Osborne CEO.

Our Festive E-Zine covers key updates, news, and events that took place between October – December. Key highlights from this bumper issue include:

  • An insight into the array of events that the BBS has hosted in the past three months
  • Exciting research updates
  • Stories from our fundraisers
  • Trustee and MAB updates

and much more! You can view the full E-Zine here.

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