The Brittle Bone Society (BBS) is committed to raising awareness and understanding of Osteogenesis Imperfecta (OI) through our ongoing outreach programme aimed at universities across the UK. This initiative, titled “What You Need to Know About My OI”, provides students, particularly those entering healthcare professions, with valuable insights into what life is like living with OI.
On the 26th of November, we were delighted to visit Queen Margaret University in Edinburgh, where BBS supporter and advocate Jamie shared his personal experiences with OI. Jamie spoke to students from the Paramedic Society about the realities of living with the condition, helping future healthcare professionals develop practical knowledge about OI. Alongside Jamie, our Support Development Officer Coreen provided updates on the important work BBS is doing to support individuals and families affected by OI.
We are eager to expand this outreach work in 2026 and reach even more universities and healthcare training programmes. By educating future professionals, we aim to improve healthcare in OI and foster a deeper understanding of OI within the medical community.
If you have connections with local universities or healthcare training institutions, we would love to hear from you. Please email us at admin@brittlebone.org and help us spread awareness as part of our “What You Need to Know About My OI” project.
Together, we can make a difference in how OI is understood and managed.
