Posted on Nov 16, 2021

Saturday 11th December at 10am

Christmas is coming and the BBS have been working hard with Santa to organise an amazing Virtual Christmas Kids party!

Join us for some festive fun and games, dancing and a visit from Santa himself!

To register, please email: admin@brittlebone.org.

Posted on May 18, 2021

Institute of Genetics and Cancer Public Engagement ONLINE EVENT – People Living with Osteogenesis Imperfecta (Brittle Bone Disease)

Tuesday 8 June 2021, 5-6pm

The Brittle Bone Society are deligted to be supporting this event.

Come and find out about research on Osteogenesis imperfecta and engage with researchers from CGEM, Institute of Genetics and Cancer, the Brittle Bone Society and Osteogenesis Imperfecta Federation Europe (OIFE).

Hear a Patient Voice – sharing their lived experiences and perspectives on what scientific research means to them.

REGISTER HERE

EVENT PROGRAMME

Tuesday 8 June 2021, 5-6pm

17:00 – 17:05 Welcome from Institute of Genetics and Cancer Host, Professor Tim Aitman, CGEM Director (Centre for Genomic and Experimental Medicine) within the IGC

17:05 – 17:15 Research update on Osteogenesis imperfecta & the TOPAZ Trial by Professor Stuart Ralston, CGEM & Scottish Champion (NHS Research Scotland) for Musculoskeletal conditions

17:15 – 17:25 Patient Voice: Mandy Grant who has OI and has recently joined the TOPAZ trial

17:25 – 17:30 Brittle Bone Society – Patricia Osborne, CEO: Shining a light on OI

17:30 – 17:35 Osteogenesis Imperfecta Federation (Europe) (OIFE) – Ingunn Westerheim, OIFE President: Who we are and what we do

17:35 – 18:00 Open Discussion – Q&A. Panel: Stuart, Mandy, Patricia & Ingunn

18:00 Event closed by Host, Professor Tim Aitman, CGEM Director

Posted on May 13, 2021

The Brittle Bone Society in conjunction with OIFE are delighted to host the 2021 Youth Event.

This Virtual Youth Event is for anyone aged 16 to 3o who has OI.

You can Register HERE

The Theme is Around the World

Get ready for a global adventure as you travel (virtually, of course!) around the world from South America to Australasia. Along with a small team of travel mates, you will face challenges in each country, earning Travel Credits to purchase your onward journeys.

Which team will cover the most ground and win the race?

What you will do? 

In teams you will embark on a virtual globe-trotting trip around the world, visiting 22 countries across 40,000 virtual miles while putting your teamwork, collaboration and creativity skills to the test!

Upon arrival in each country, players have to work together to unlock tasks. Starting in Argentina, each country contains a series of tasks & challenges to earn enough travel credits to make it to their next destination.

Before moving on, teams will have the chance to guess their next destination from a series of cryptic clues. The team of globe trotters who guess correctly will be rewarded with valuable bonus travel credits!

Challenges range from performing the Haka in New Zealand and demonstrating Kung-Fu skills in China, to exploring well-known landmarks on Google Maps to uncover the answers to questions. Keep an eye on the clock, though – travel credits are earned not only through completing tasks but for distance travelled too. The team with the most travel credits at the end will be crowned the winners!

There’s something for everyone.  How far can you make it across the globe from Argentina to New Zealand in the given time?

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