Information for schools

Starting pre-school or primary school can be an exciting and daunting time for parents, particularly if your child has Osteogenesis Imperfecta (OI). Whether you’re a parent, or a teacher expecting a new student with OI, the information on on this page lists some useful resources around some areas which you may wish to consider.

Some children with OI will need extra help in the classroom, others will just need the teacher to be aware of their special situation and plan accordingly. The overwhelming majority of children with OI go to mainstream schools and do well. Staff quickly learn the ‘do’s and don’ts’ of looking after the child and it becomes part of daily classroom life.

The best guide to an individual child’s needs is the experience of the parent(s) and, where appropriate the child themselves. It is also worth involving the Childs Healthcare Team (ie Occupational Therapist) in early conversations.

OI should not stop the child enjoying a full and rewarding school experience.


Factsheets for Schools


Starting Nursery or Pre-School
Starting Primary School
Starting Secondary School
Including children in PE
Emotional Wellbeing
Managing Fractures


For more information about OI see our:


About OI page
Full list of Factsheets
Talks and Films on our Youtube Channel.


Other Useful Resources


The Charity Contact have detailed information regarding: Special Education Needs (SEN), EHC Plans and Assessments, Transport to school, Choosing the right school and much more.

The Government website section on educational rights also lists useful information in relation to SEN and information regarding reasonable adjustments.

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