Factsheets

You can download our factsheets for free by clicking on the links below.

Hard copies can be sent out free of charge, however, a contribution towards production costs and postage will enable the Brittle Bone Society to continue its vital work.

All our factsheets are endorsed by healthcare professionals from the NHS Centres of Excellence, including the Paediatric Osteogenesis Imperfecta National Team (POINT), and by our Medical Advisory Board.  Our resources are designed to give anybody affected by OI, and professionals working with someone who has OI, a source of reliable information.

 

General information

 

Information on Osteogenesis Imperfecta
Adults With OI 
Bisphosphonate Treatments
British Paediatric and Adolescent Bone Group Bisphosphate Leaflet
Dental Care
Hearing Loss
Scoliosis
Pregnancy and Osteogenesis Imperfecta

 

Diagnosis and Genetics

 

Genetics
Diagnosis of Osteogenesis Imperfecta

To find a Medical Genetics Centre near you, click here.

 

Information for children and schools

 

Emotional Wellbeing of Children
Caring for an Infant
Managing Fractures
Wheeled Mobility
Starting Nursery or Pre-School
Starting Primary School
Starting Secondary School
Children and PE

 

For resources on Independent Living see here.

For information about Financial Support and benefits see here.

This information should not serve as medical advice or instruction. Please always consult your healthcare professional in the first instance.

Subscribe to our mailing list

Sign up now to be the first to know about special events