In the UK, clinicians and patient representatives came together specialising in rare bone conditions to identify care challenges and make recommendations on potential solutions to help improve care and promote a holistic approach to support people with these conditions. A steering committee was convened to develop the Proposed framework on a networked service model for care of adults living with rare bone conditions in England.
The document developed was led and funded by Kyowa Kirin, with writing support from Evoke Incisive Health. The steering committee had full editorial control of its content and received no payment for their contribution and insights.
Below is an infographic of the proposed framework on a networked service model for care of adults living with rare bone conditions in England.
You can read more about the framework here.