Following our Mini Conference in Athlone, Ireland, we are pleased to share an exciting public and patient involvement (PPI) opportunity for people living with a rare condition in Ireland.
At the conference, Professor Rachel Crowley, Consultant Endocrinologist at St Vincent’s University Hospital Dublin and the newest member of our Medical Advisory Board, spoke about the Rare Disease Clinical Trial Network, which she co-leads.
The network aims to increase both the quality and availability of rare disease clinical trials in Ireland by supporting trial design and set-up, improving inclusivity in clinical research, and providing education and training opportunities for early-career researchers working in the rare disease field.
If you would like to contribute your lived experience and help shape the future of rare disease research, you can get involved by becoming a PPI Partner. Find out more and sign up here.