THIS SURVEY IS NOW CLOSED
Dental concerns are common in individuals living with OI, and up to 50%, depending on type, are thought to have Dentinogenesis Imperfecta (DI).
There is limited evidence regarding the standard of care individuals in the UK receive. To investigate current issues and care experiences from the perspective of those living with OI, the Brittle Bone Society (BBS) distributed a survey in the UK and Ireland. The survey was created in conjunction with the Medical and Scientific Advisory Boards and individuals with the condition. It was distributed via the BBS social media platforms during Feb 2023.
The survey explores 3 main themes looking at dental problems, dental concerns and accessing care both in the community and within dental hospitals.
You can view the key findings of the dental survey on our below info-graphic: