Experience of Families in Paediatric OI Healthcare

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Experience of Families in Paediatric OI Healthcare

Dr Meena Balasubramanian of Sheffield Childrens NHS Foundation Trust – assessing the balance of cost and determining the experience of families in Paediatric Osteogenesis Imperfecta Healthcare (ABCD Study).

 

Most patients with OI go through a prolonged patient journey before diagnosis is confirmed and appropriate treatment is instituted. The ABCD Study is designed to assess the healthcare needs for children with OI and how early diagnosis impacts their patient journey and healthcare costs.

For further information about this study you can download the report HERE.

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