Exploring the parent/carer experience of unexplained bone fractures and examinations undertaken in the radiology department prior to formal diagnosis of OI  


My name is Jessica Eaton and I work as a Radiographer at Great Ormond Street Hospital.

We are seeking the views of parents in families with Osteogenesis Imperfecta who may have had investigations for unexplained bone fractures before their formal diagnosis of the condition. As part of this investigation, a series of X-rays on young children, called a skeletal survey, is undertaken.

We are planning an NIHR funded study investigating how parents are affected by their child undergoing these investigations. We want to improve the care families receive and ensure the service better serves their needs.


Would you like to join my Parent and Carer Steering Group?


I am looking for 5 parents / carers to join a Parent & Carer Steering Group and advise on my project, to help ensure that the voices of parents and carers are fully included in this research.

By sharing your experience, you can help make the investigation process better for other families in the future by highlighting areas for improvement.


What will it involve?


3 Meetings (online via Microsoft Teams) over a 4-month period, sharing ideas and reading documents. Don’t worry if you’ve never done this before, all resources and training will be provided. For each session, you will receive a payment of £20 for your time.


How to apply?


If you are interested and think you could help, or would just like more information about the role, please email me: Jessica Eaton at Jessica.Eaton@gosh.nhs.uk.


The closing date for applications is Monday 24th April 2023 @ 11:59pm.

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