** This study is now closed to recruitment **
Description of desired participants for study:
Adolescents aged 12-17 diagnosed with Osteogenesis Imperfecta (OI) or Brittle Bone Disease and their parent/caregiver/carer.
Study invitation for Brittle Bone Society to share with patients/caregivers:
Clinical Outcomes Solutions, a health research consultancy, is conducting research into Brittle Bone Disease/OI on behalf of our sponsor, Mereo Biopharma, a pharmaceutical company that is studying OI. The purpose of this research is to better understand, from children and caregivers of children with OI, what their current experience of OI is and how the disease impacts their lives.
Participants aged 12-17 and their parent/caregiver/carer will be invited to take part in a 60-minute telephone interview. The adolescents and caregiver will be interviewed separately.
This research is confidential. Any contact information you provide will only be used for the purposes of scheduling the interview if you take part. To see if you are eligible to participate, or to find out more about this study, please contact Trina Soileau at trina.soileau@clinoutsolutions.com or call 07853 652276.
